I live in West Virginia. 24 year old daughter is on WV Medicaid. She has breathing issues and heart issues and has been rapidly deteriorating over the past two years. During all but the last month she has been told the fact that she used to be able to walk 3 miles with no issues and now can't make it up the hill from the back yard about 20 yards without stopping to rest or that her lips turn blue while listening to music sitting on a swing is all anxiety and all in her head. She also has seen her ability to eat anything with corn and most other foods disappear. She lives on a super limited diet not by choice. Again- ALL anxiety and all in her head. She needs friends….
Anyway NOW they have determined that Oh yes- there are heart issues and her blood oxygen dropping to 68% while having full oxygen mask on while walking on a treadmill might NOT be all anxiety. The problem is that the specialists and doctors she needs are in Ohio. We live on the border. We have gotten some decent help (finally) from a doctor across the river, however, she really needs to go to Pittsburgh or Cincinnati or even Columbus to find out everything and see if it can be treated.
WV Medicaid says- Well, it's not the facility, it's the individual doctor who has to agree to take out of state Medicaid. But she needs a whole treatment team that have higher skills than any of the WV hospitals including Morgantown.
How do my wife and I get her the treatment she needs at the facility she needs with the doctors and specialists she needs? We can't get doctors that we don't know who they are yet to sign off on paying for the treatment. And you must be an Ohio resident for indigent care at an Ohio facility.
Any advice or assistance would be welcome.
